Recent information

A A
A recent article in the "Journal of Neurology, Neurosurgery & Psychiatry" suggests that ingesting large quantities of salt may cause SM.
2014-09-23

Scientists from the Harvard University in Boston USA and from the “Dr Raul Carrea” Institute of Neruological Studies in Buenos Aires Argentina studies the impact of salt ingestion on SM.

The researchers have found a statistically significant relationship between the amount of salt ingested on a daily basis and the progression of SM.

The risk of disease progression was 175 % higher in patients with moderate salt ingestion (between 2 and 4.8 grams of salt per day) compared to the group with a salt ingestion of less than 2 grams per day. Whereas the risk of disease progression in the group that consumed more than 4.8 grams of salt per day was 295 % higher.

Share:
Everyone can help in the struggle against MS
2014-08-08

Recently Marcin Dziedzic, a Polish journalist and photographer, started an unique undertaking. He took the photos of modern day Warsaw and combined them with old photos of Warsaw taken during the Warsaw Uprising during the II World War. The author states that his project named “44’Now” is meant to celebrate human courage in every form, small and huge, both in the past and in the present.

The project is dedicated to the authors wife who has been fighting an uneven battle against multiple sclerosis for more than a decade. While it surely takes bravery to stand up and fight for a cause here and now it takes  unwavering will to struggle against a disease each and every day.

Share:
Stem Cell Therapy for Multiple Sclerosis Shows Promise in Mouse Model
2014-06-18

Mice crippled by an autoimmune disease similar to multiple sclerosis (MS) regained the ability to walk and run after a team of researchers implanted human stem cells into their injured spinal cords. The research was a joint effort conducted at The Scripps Research Institute, University of Utah and University of California. What is most remarkable is that the mice recovered even after their bodies rejected the human stem cells.

The researchers speculate that the mice’s dramatic recovery could be a milestone in the creation of new ways of treating multiple sclerosis in humans. "This is a great step forward in the development of new therapies for stopping disease progression and promoting repair for MS patients,” said co-author Craig Walsh, a UC Irvine immunologist.

Stem Cell Therapy for MS?

The research has shown that the implanted human stem cells triggered the creation of white blood cells known as regulatory T cells. These cells are responsible for “shutting down” the autoimmune response at the end of an inflammation. The most amazing part of the findings is that the implanted cells also released proteins that triggered the re-myelination of the nerve cells that had been stripped of their protective sheaths.

Share:
Today I'm writing this in Ameds clinic. I'm back for another check-up. During these 4 years my condition has slowly become better and better. I can walk over one km (if I’m not tired). I also walk relatively fast and normal.
2014-06-04

Hello,

I've been asked to tell you about my personal experince with Ameds. In June 2010 on the second day of the clinics opening I became the third or fourth patient with them.

In 1976, at the age of twenty I Was diagnosed with MS ! Over those years, I have had countless relapses. In 2004 my symptoms became much, much ,more severe ! At this time my relapses were 4 to 5 times a Year, so much so i could hardly walk more than 100m with walking  sticks. I also had severe spasticity on my legs and back. This also caused major problems to my Lower back, which was very painful. Also affected Was my Balance, this caused me to fall over constantly !

In June 2010, I was diagnosed with CCSVI. Both jugular veins were narrowed, the left one was worse. My left jugular vein was ballooned by doctor Zarebinski. Immediately after the procedure, I felt instant relief in The form of both feet going back to normal after being dark lilac and cold .

During the obligatory 6 hours lying after the procedure the spasticity in my back subsided considerably .  After 3 weeks I had to decrease my dose by half of my muscle relaxant medicines, because my legs were uncontrolable.  I walked better and faster and the balance was much better. Normal activities like dressing was much easier.

In October 2010 I came back for a check-up. I  had my right leg a little clumpsy again. The Examination showed a slight restenosis in the processed jugular. Doctor Zarebinski ballooned it more and this time ballooned also the narrowing of the right jugular. After 3 weeks I "had to"  quit my muscle relaxants totally.

Today I'm writing this in Ameds clinic. I'm back for another check-up. During these 4 years my condition has slowly become  better and better. I can walk over one km (if I’m not tired). I also walk relatively fast and normal.

The consultation shows good Flowings throughout my veins and the MRI is just like 4years ago, zero new plaques.

And the best of all is quality of life.  I’m able to go on spending my summer boating on the beautiful archipelago of the Gulf of Finland.

Thank you all skilled and kind people in Ameds :-)

Best regards
Heidi Murtola-Tamminen

Share:
This week Basia - one of AMEDS’ Patient coordinators had the opportunity to take a tour of the Zachęta Art Gallery – the first gallery in Poland that is fully accessible to people with disabilities.
2014-05-23

This week Basia - one of AMEDS’ Patient coordinators had the opportunity to take a tour of the Zachęta Art Gallery – the first gallery in Poland that is fully accessible to people with disabilities.

What is stunning about the gallery is that Zachęta’s administration was not satisfied with common solutions like access ramps and elevators, they made additional adjustments… Every exhibit in the gallery is arranged in a way that enables easy viewing from a wheelchair and all intractable objects i.e. multimedia tablets are within reach from a sitting position.

Basia was offered the chance to tour the gallery on a wheelchair in order to have a firsthand experience  of how it is like for people with disabilities. “People viewing the exhibit on foot left after an hour. It took me twice as long to see everything on a wheelchair. I was really tired when I finally finished. This experience makes the stamina and fortitude of our patients seem that much more amazing to me.“

The continued effort of the Polish community to make the life of people with disabilities better is inspiring to say the least. Basia summed her trip up with one sentence “Viewing art from a different persons perspective was very insightful for me, I am glad I had the chance to do it”

Share:
According to the „Journal of Clinical Investigation” the reason that causes multiple sclerosis (MS) to develop more frequently in females than males are brain differences between the two genders.
2014-05-19

According to the „Journal of Clinical Investigation” the reason that causes multiple sclerosis (MS) to develop more frequently in females than males are brain differences between the two genders.

There are 4 times more females with MS than males – up until now this difference was attributed to differences in hormone levels. However a new study conducted at the Washington University School of Medicine might suggest that the main culprit is S1PR2, a protein that is gradually deposited in the brain during the course of MS.

The research has shown that S1PR2 levels in the central nervous system are much higher in females than they are in males.

According to the scientists involved S1PR2 might be involved in forming the brain-blood barrier responsible for preventing harmful substances from entering the brain. Prof. Robyn Klein from the Washington School of Medicine stated that this finding might help in the development of new treatment methods for MS patients.

Share:
“MS – fight for yourself”
2014-05-14

In May 2014 the third installment of the „MS – fight for yourself” social campaign will take place in Poland. The campaign compares the everyday effort of people struggling with MS to rigorous athlete training and emphasizes that virtues such as determination, courage and perseverance are essential to successfully combat MS.

This year the campaigns slogan is “You have to fight, because your life is at stake...” and it is aimed at spreading social awareness regarding the situation of MS patients in Poland. It also serves as a reminder, for people already diagnosed with MS, that rehabilitation and modern treatment methods can be a gateway to a normal life.

The campaign is endorsed by the largest newspapers in Poland as well as over 20 TV and radio stations. Besides the patronage of Polish media and MS related organizations the campaign is also under the auspices of  the Multiple Sclerosis International Federation (MSIF) and the European Multiple Sclerosis Platform (EMSP).

Share:
To keep you up to date with statistics here is the 2014 MS World MAP!
2014-04-14

To keep you up to date with statistics here is the 2014 MS World MAP!

Share:
Scientists from the College University in London have published an article in the Lancet about the effects of Simvastatin (a drug typically used in cardiology) on multiple sclerosis (MS).
2014-03-20

Scientists from the College University in London have published an article in the Lancet about the effects of Simvastatin (a drug typically used in cardiology) on multiple sclerosis (MS).

The study has shown that patients who regularly took doses of Simvastatin had a 43% lower rate of brain nervous tissue decay than patients in the control group.

The scientists attribute these findings to the supposed anti-inflammatory and neuro-protective properties of Simvastatin.

However the main author of the study dr Chatway suggests caution in the interpretation of the results. Although Simvastatin slows down the neurodegenerative process it does not alleviate the symptoms of the disease.

Share:
Autologous hematopoietic cell transplantation a new form of therapy for multiple sclerosis MS patients
2013-10-25

Autologous hematopoietic cell transplantation - a new form of therapy for multiple sclerosis (MS) patients has been successfully used in the treatment of 9 patients in Poland. This form of therapy is only available in one place in Poland - the Hematology and Bone Marrow Transplantation Clinic.

The procedure is relatively simple but the patient has to remain under medical supervision for a long period of time. The treatment offers a chance to stop MS progression and even revert the symptoms brought on by the disease.

With the aid of stimulant drugs a large number of hematopoietic cells is derived from the patient’s peripheral blood. The cells are then frozen in liquid nitrogen and stored for later use. After a short recovery period the patient undergoes intensive chemotherapy and immunotherapy. Although the patient’s immune system is severely weakened during these procedures the pathogen responsible for MS is also destroyed. After 3 to 4 weeks the patient’s previously derived cells are reintroduced in to the patient’s blood stream, under close supervision. Due to the fact that the cells are autologous there is no risk of rejection during the transplant.

The head of the Hematology and Bone Marrow Transplantation Clinic stated that the results so far are very satisfying, patients that were previously completely bedbound regained the ability to walk with the use of a cane. She also stated that awareness regarding the availability of this treatment method in is still very low. She hopes that more MS patients will decide to use the new treatment method and that future patients will not resort to this treatment method as a last resort, since certain degenerative changes are irreversible once they take place.

Share:
Page:  1, 2, 3, 4, 5, 6